Celine Dion’s sister says she “lost control of her muscles” amid battle with stiff person syndrome

music

by Evan Real

Celine Dion’s sister, Claudette Dion, shares a heartbreaking update about the star’s battle with stiff person syndrome.

Claudette recently told Canadian 7 Jours that Celine, 55, “lost control of her muscles.” According to Daily MayBecause the debilitating condition worsened over time.

“What breaks my heart is that she was always so disciplined,” she told the outlet. “She always worked hard. Our mother always told her, ‘You’ll do it right.’ You’ll do it right.”

Claudette added that Celine has the desire to perform again despite the bleak forecasts.

She said: “It is true that the goal in our and her dreams is to return to the stage.” “In what capacity? I don’t know.”

In December 2022, Celine announced that she would have to cancel the remainder of her “Courage” world tour due to the progressive and incurable neurological disorder that attacks the muscles – including the vocal cords and heart.

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“The vocal cords are muscles, and the heart is also a muscle,” Claudette admitted while speaking to 7 Jours. “This is what comes to get me. Because it’s a one-in-a-million case, scientists haven’t done a lot of research because it doesn’t affect a large number of people.

The “My Heart Will Go On” hitmaker’s sister went on to say that she has been in contact with many people suffering from Stiff Person Syndrome – and their loved ones – who have “given up hope” that a cure will ever be found.

An influx of patients and their families have reached out to the Dion family’s charity, the Mama Dion Foundation, for guidance, Claudette said. They also sent sweet messages while Celine battles the disease.

“If you knew how many letters the foundation receives about Celine! People tell us they love her and are praying for her,” she said. “She receives so many letters, gifts and blessed crosses.”

The good wishes and prayers keep coming, but Claudette He previously stated this to Le Journal de Montreal That Celine had seen no significant improvement in her health – even though Dion’s family was working with “the best researchers in the field.”

In the Daily Mail, she previously told Le Journal de Montreal that Celine “can’t find any effective medicine,” but added that maintaining “hope is important.”

Claudette’s 7 Jours interview comes two months after Celine — who last took the stage in March 2020 — made a rare public appearance during an NHL game at T-Mobile Arena in Las Vegas on October 30.

The “I’m Alive” singer took her sons — Rene Charles, 22, and 13-year-old twins Eddie and Nelson, whom she shared with her late husband Rene Angelil — backstage, where they posed for photos with some of the hockey players. players.